Tuesday, January 19, 2010

Time keeps on Ticking

it won't be long now, my first born son will be off fighting for this great nation we live in. somedays i am so proud i am bursting with energy, then some days i feel like i want to crawl under my bed and not come out for a day or two. my time with him is drawing to a close. time doesnt stop for me or him or anyone.
tomorrow the little Phoenix has Play therapy. he is doing better with his speech and communication. this type of therapy seems to help his autism. he has been making great strides with his play and learning to play with things the correct way. i was thinking today, that my other sons didnt seem as advanced at this stage as the Phoenix. even though he cant communicate well, he is still very aware of letters, shapes and colors. he has learned how to draw pretty good. he loves to draw circles. Phoenix will be starting school soon. he is almost three. what will i do without my son during the day. i was hoping on spending more time with him, but its time for school.

Saturday, December 26, 2009

why my house

i imagine a row of 125 houses all filled with children. An Austism chose my house. Maybe i should have marked my door like the Hebrews did at Passover.
Amazing things dwell within that spirit of is. The child already has a relationship with Christ. When we visit the thrift store he can pick up all things jesus. I want to get him a Christ Buddy. He is not so scary. Why does Jesus have to be so creepy. All except the baby jesus.

we are working hard to get on Phoenix's level. i dont know if i ever could. but, that seems to be only way to reach him. what is happening? where is the life that i recognize?

my pawpaw has left this world.. i miss him so much. i understand grief now. it hurts so bad.
the last time i saw him, i told him how much i loved him. i knew it would be the last time i saw him. painful as it is, i knew immediately he felt better. he didnt feel so good......

Friday, November 13, 2009

dancing in a fire

i tell you, some times i need someone to listen. but i feel i stand alone most of the time. i have tried taking care of myself the best i can......
Fibromyalgia has been kicking my ass lately. i have been going to water therapy and that was pretty awesome. who knew?? another thing that has been bothering me is my B-12 deficiency. my nerves were literally sizzling. I felt like i had electricity vibrating through my body, like i was dancing in a fire. i remember laying in bed one night before this flare began. I woke up to my entire body feeling like fire was flowing through my me. this could have been a spiritual experience i felt like i could have moved mountains with this fire power. look now, look around. voices and other sounds, can you see me now?
well, to sum all that up, i have to give myself b-12 shots. Clear the way for me.
you know your something special, but who knows what, i just shine when i can..
to all the billion souls out there, the life you've been given, can be grand, sometimes it doesnt seem that way. look at yourself, you make me feel alive. luck has always been on your side. i dont need to understand this. i cant put any better.

the winter is coming to the mountains. save me from the reminders,, i feel the sun fading away.. it is lonely here. my world is different.


in her i know i am one

Wednesday, November 4, 2009

Autism Sucks

well, the intervention team believes my Crystal has Autism.
Phoenix's teacher asks me how i feel about the possibility of Autism.
I said to her, Autism Spectrum Disorder is such a broad term, he probably does fall somewhere in the Spectrum. But let's see... as i spoke, i felt my heart sinking, i guess she is trying to prepare me.. I dont know...
Phoenix can talk, sure he has speech delay. but, if you listen, he sings.. and sings. I remember visiting with my sister, she said to me.. " is he singing"
He sings all the time.. My two year old is not talking or communicating the way the medical community deems fit.. Phoenix does communicate with me. But i cant tell his doctor or speech therapist of his mental communication.


in her i know i am one